PIGA Congenital Disorder of Glycosylation (MCAHS2)

CDG Care Awards $20,000 Research Grant for PIGA-CDG Research

In April 2018, CDG Care released a press release announcing a research grant for PIGA-CDG research. The press release (below) can be found on CDG Care’s website: http://cdgcare.com/research/.

Press Release – CDG CARE Awards $20,000 Research Grant for PIGA-CDG Research

CDG CARE and researchers from Osaka University in Japan enter into a collaboration to lay the groundwork in advancing CDG research for effective supplements in the use of persons diagnosed with a PIGA-CDG mutation. This research will bridge the gap from identification/diagnosis to treatment and if tests prove successful, will mean the first step in identifying a potential treatment for PIGA patients, and other patients on the same enzymatic pathway.

The basis for this project will help determine if these supplements are effective and to what extent they improve the degree of GPI-anchor deficiency. This data will be critical in obtaining future FDA approval for a clinical trial. To learn more about the research and advancements being made in the area of PIGA-CDG, please Click HERE.